Wednesday, April 18, 2012

Dr. New Rheumatologist

I’m not in the mood to write at all – the weather is so amazing! But many of you have been on the emotional roller coaster with me trying to find a new rheumatologist & supported me with my anxieties, so you deserve this!

When I first contacted this rheumatology office, my intention was to schedule an appointment with a lady rheumatologist. There’s 6 or 7 different rheumatologists in that office. The receptionist told me the next available appointment for a new patient is in the end of May, and it was February when I called! I thought that was far too long to wait, considering how long I had waited already plus how much pain I was in. So I asked if any other rheumatologist in their office could see me earlier. I was desperate, but hesitant, since who wants the doctor that is “not as popular”?! So I got my April 16th appointment & that was yesterday.

I made the mistake of procrastinating getting all my documents/records together and then scrambling to get it done on the day of the appointment. I would’ve saved myself a lot of worry and anxiety, if I had done it before! I got myself so worked up, I couldn’t speak or think properly. I was also very anxious about the new doctor – is he going to live up to my expectations and hopes? Will he be cold & distant? I was tired and weary, looking for a rheumatologist. I made a list of “must have’s” in my previous post, based on my experience with Dr. Pearls. To save you time, I’m posting it again, with additions of + symbol if it fits to my new doctor.

  • Knows what they're doing +
  • Has waiting time less than 30 mins
  • Speaks fluent English +
  • Is a woman
  • Listens to me +
  • Believes me +
  • Won't tell me "I've been doing this for 30 years" +
  • Has been a rheumatologist for 10-15 years max 
  • Understands my complicated medical history +
  • Takes me seriously! +

7 out of 10 isn’t bad! And quite honestly, knowing what I know now – I don’t mind waiting for the doctor, if I know he will do a thorough exam when it’s my turn! The fact that he’s a man and he’s been a rheumatologist for over 20 years, I just can’t hold them against him ;) The bottom line is, he listened, asked questions, was thorough, didn’t assume anything, smiled, very down to earth, easily approachable, didn’t feel like he was in any hurry to finish, he spent more than an hour with me! He lingered, talked some more while the nurse took blood. We talked about different treatment options & I impressed him with my knowledge ;) He had his colleague look at my legs, that are covered in “something” (can’t really tell you what it is, since I don’t know). I was in rheumatologist heaven! If I had never had a bad experience with Dr. Pearls, I might not have known to appreciate him.

I told him my ex-rheum diagnosed me with RA, but the new doctor is running tests to exclude other possible diagnosis. I’m getting a skin biopsy done for my legs tomorrow. He wants to be sure it’s not Vasculitis. I’m also going to get new x-rays, to compare to the ones from year ago. He did confirm I have a large rheumatoid nodule forming in my elbow, probably both.

Now about treatment options - since I had a drug induced liver failure back in 2007, we need to be extra cautious with how to treat my RA. While all my tests are pending, I was given a cortisone injection. Something called Depo Medrol. It was not injected directly to the joint(s), but to a muscle at my hip. Apparently it’s going to help with inflammation & reduce pain, just like the pill form of steroid I’m taking. The shot itself stung big time, but I didn’t feel any different otherwise. This morning however… I was in more pain than I have been in a long while & my joints were super stiff! I couldn’t pull the orange juice out of the fridge, I couldn’t push the button to put laundry detergent into the cup! Everything was “can you help me?”, “I can’t do this”, very frustrating, having been a bit better since starting Prednisone. So I hope this is just a temporary setback & the pain will subside once the cortisone really kicks in! I have heard it could take 24-48 hours for the steroid to start doing its magic, and that things will get worse at first… oh yay ;) If I know the relief is coming, I don’t have any trouble waiting!

We both agree on trying a biologic treatment. He mentioned Enbrel (which is where my mind was at as it is) & Orencia. We even talked about Methotrexate, but given my history, it’s the final treatment I will ever try. I cringed when he mentioned Orencia, I remembered my Twitter friends’ poor response to it. He did say, there’s 2 kinds of Orencia (I didn’t know) & I will look into it. But after we have a confirmed diagnosis, we’ll begin with Enbrel and cross our fingers :) Thanks to Barb's video on how to inject the Enbrel shot, I'm not too afraid of it!

I feel a sense of empowerment with how informed I’ve become through the RA Twitter community. I feel blessed & lucky to have made RA friends all over the world & to have found a new rheumatologist. Both have given me perspective, I’ve learned a lot. I learned you don’t have to be a woman to be a heaven sent rheumatologist! I need to name my new doctor, any ideas? :)

My lil' cutie March 2012 :)
P.s. I have to get my lil one to the dermatologist to get a biopsy asap. He’s been complaining of back pain for a while now, plus his knees/legs hurt occasionally. They may hurt more than that, but he’s not a complainer, since he hates going to the doctor. He has chronic eczema, but he also has other rashes, that seem to be relentless. The pains could also be just growing pains, but I need to get him checked. To be continued…


  1. Super huge good news! Glad you had a great appointment. It is fantastic to have a doctor who listens to you and treats you as an equal in helping with the treatment. Praying the Enbrel takes hold for you. Blessings.

    1. It really was such a relief! My previous rheumatologist had a sense of superiority about her & seemed she was intimidated/annoyed by my knowledge. In rheumatology it's especially important patient and doctor work as a team. I'm excited!

  2. hey girlie! EXCELLENT BLOG! Do not let my reaction to orencia steer you in to your decisions. Remember, we are ALL different. I take MTX and have no problem with my liver. So... we are different.
    I think you should name your new doc--- Dr Wonderful. Sorry... mine is Dr Awesome.. name is taken! LOLOLO Love you! Kim

    1. The doctor did say he hadn't heard anyone have a bad reaction to it, but then again, he only knows his patients, not the whole world! :) But you're right, we're all different & I will take it one step at a time. I have high hopes for Enbrel. Kind of afraid to have high hopes, but I can't help it! It's brought quality of life to so many! I'm going forward with hope! Without it, this disease is more depressing than depressing! ♥ ~ Funny thing you should mention Dr. Wonderful, I thought about that! I will keep thinking, if I come up with something else - it's like naming my new baby, lol :) Much healing power your way, Kim!

  3. Sari, I can't respond with too many words tonight because as I tweeted you, my brain is oatmeal lately...but All I can say is I am so thrilled for you. You so deserve this! I'm calling your new Rheumy- Dr. "Bring-It-On"! Because he better bring it on & make you better! ;) Seriously though, my hopes & prayers for you have been just that, that this doc would turn out to be what You wanted in a Rheumy and that you would & Will get the appropriate and effective result with Enbrel! Big Big Gentle hugs to you <3
    I hope all goes well w/ your son too. Stay strong my dear friend and never give up!